Our life with acute myeloid leukemia

Just a diary I'm keeping after we found out on 9th June 2010 (our baby's first birthday) that my other half has been diagnosed with an aggressive form of cancer and how we get by (hopefully I'll be better with this than I am with a diary :giggle: )

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Are you alright?

Permanent Linkby 0_Lisa_0 on Wed Jun 16, 2010 12:13 pm

Ah the age old question, most frequently asked when the world has taken a great big crap right on your doorstep. We all know the correct response "I'm ok" and at the present time I frequently have this little Q&A, but would you like to know a secret.... I'm not ok, in fact ok was a few stops down the line and I am now heading full steam ahead into a little town precariously perched between sanity and a nervous break down.
My head is spinning, I don't know where to unload all the sh** that is going through my brain, partly because the only person I want to share with has enough on his plate at the minute and partly because I'm worried the way I feel and the things that pass through my mind with horrid picture detail and stalk my nightmares will cause anyone I share them with to step away and get me locked up. I worry about what happens if OH doesn't make it but no-one will discuss it with me because we have to look at the positives but that's all well and good but WHAT IF HE DOESN'T MAKE IT!? I'll be alone and I don't want to be, I'll miss him and I don't want, I want him to be with me and give me a big hug and this nightmare to end and we're only a week in!? What happens at the end, has some mean god out there decided this is already written, have they decided to take him away from me and the moments I should be treasuring are marred by tubes and illnesses and everyday life that no matter how much I want it to just won't given me a break!?
There just isn't anything to look forward to at the minute, no little respite, no breaks no chance of a peaceful lie down. I've been taking an "if I don't laugh I'll cry" attitude but I the stand up has ended and there's only so long you can laugh at the memory of the show. I'm trying to prepare for what might happen next week and no-one wants to look even that far ahead, they keep telling me to focus on today but today f***ing SUCKS!!! I need a break but I don't want to take one, I have to stay strong for OH and Austin but the tiny little platform I'm stood on trying to hold them all together is an awfully lonely place if I'm quite honest, I would not wish this situation on my worst enemy and I just hope that this next 6 months aren't as long as they are currently threatening to be :cry:


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Re: Are you alright?

Permanent Linkby shoogah01 on Wed Jun 16, 2010 1:49 pm

Oh hun :hug:
I can't imagine how you must be feeling at the moment but I can say that we are all here to listen.

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Re: Are you alright?

Permanent Linkby twinkletot on Wed Jun 16, 2010 7:22 pm

Oh hun you can sound off here anytime and we'll be ready to listen xx

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Re: Are you alright?

Permanent Linkby choccylisa on Thu Jun 17, 2010 11:53 am

:hug: :hug: :hug: We're all here for you :hug: :hug:

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