hf1

Flat Head Syndrome

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lazylexis
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Re: Flat Head Syndrome

Postby lazylexis » Tue May 11, 2010 6:50 pm

As far as i know the nhs won't fund the helmets as they aren't seen as necessary for something essentially cosmetic that tends to get better with time.the flat heads do take months to change shape and tend to do so gradually so i'd say give it longer as it's probably too early to tell.

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babygrowbelly
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Re: Flat Head Syndrome

Postby babygrowbelly » Tue May 11, 2010 6:55 pm

My son has a helmet and I suppose I am on the opposite side as like you I trusted the nhs when I said from him being born his head was mishaped (to the point of ears out of line, one side of face much bigger than the other and head twisting to one side) in November we finally got to see a specialist (he was born in May) and they agreed and referred to someone in Leeds and said a helmet maybe needed and it was free there and also referred him for physio. Due to a mix up on nhs part he didnt get seen until Feb and the specialist then said nothing he could do due to his age and they were no longer offering helmets on the nhs :roll: and although his head hadnt improved like they initially said there is nothing they can do.

We then had to wait another month before he saw a physio (10mth old) and they said all the exercises they would do with him were pointless due to his age as he was far to mobile for them to try and work with him without hurting him.

Due to taking redundancy I was in the position to looking into the helmet although the money was meant for something else :cry: and we went along for a consultation and she actually thought to look at he was not too bad (he now has hair :giggle: ) but told us what measurements are classed as mild, moderate and severe and then went to measure him, he came back as severe which even she was surprised with but I knew that this may cause problems in the future for him when needing a bike helmet, wearing glasses and I have read reports about problems with teeth due to position of head so we decided to try it as he is a lot older than they would normally start at.

The first afternoon was awful as he kept trying to pull it off and I felt so bad but now he isnt even bothered by it and it is almost a blessing as he likes to throw himself around and I am sure he would have some horrendous bruises on his head otherwise. He went back a week before his birthday (last week) and the measurements have already changed for the better. :mrgreen:

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babygrowbelly
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Re: Flat Head Syndrome

Postby babygrowbelly » Tue May 11, 2010 6:59 pm

Just for you to see....

Image

Image

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Cyrillia
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Re: Flat Head Syndrome

Postby Cyrillia » Tue May 11, 2010 7:56 pm

Thanks for that - it's good to know both perspectives. :D

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babygrowbelly
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Sucker for Cloth Nappies

Re: Flat Head Syndrome

Postby babygrowbelly » Tue May 11, 2010 8:08 pm

All I would say is do what YOU think is best I wish I had made the decision a long time ago and gone with what me and hubby thought and not listened to the docs/hv/relatives etc as he wouldn't have had to wear it for so long (now has to wear for 6 months instead of 3). I would suggest going to see a clinic (i have info if you need) as they do a free consultation to ask questions and discuss further and they can show you lots of different pics etc and the lady we see is lovely. :hug:

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Cyrillia
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Re: Flat Head Syndrome

Postby Cyrillia » Wed May 12, 2010 8:12 am

Thanks. :D

I'd really appreciate a link if you have one - the one I've been on so far is called 'Plagiocare'. I can't imagine there are too many places that do these sorts of things? The initial consultation is free with them too, so maybe I'll give them a ring and take him to be assessed as then at least when he has his next appointment with the paediatricians I'll have all the facts.

Sarah
x

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babygrowbelly
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Re: Flat Head Syndrome

Postby babygrowbelly » Wed May 12, 2010 8:39 am

http://www.ossur.co.uk/Pages/10964

I think it worth going for the consultation just so you have more information to make a decision, I regret not talking Caleb earlier and we have to hope his head will still change :hug:

ETA not sure where you live but this is the Leeds clinic but they have several in the country.

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Annette
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Re: Flat Head Syndrome

Postby Annette » Wed May 12, 2010 9:58 am

I would agree with pp that you have to do what you think is best. My experience was that Charlotte did appear to have quite a flat head as she spent alot of time on her back, sleeping and sitting in a chair as she was happy like that. I worried about it a little bit but she has a perfect head now and it just seemed to reshape as she got older. With Ben I didn't even think about it because he never slept and spent all day in a sling so I think that really made a difference. But as Rory is still so young I would have thought it would correct itself but I don't know and I don't know the severity of it. At least you have found someone with experience of it - isn't this place great :mrgreen:

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Miss_Purple
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Cloth Nappy Aficionado

Re: Flat Head Syndrome

Postby Miss_Purple » Wed May 12, 2010 10:02 am

Hi, I haven't read all the responses but just wanted to say I have one of those baby lovenest cushions which are designed to help with this (like this one: http://www.amazon.co.uk/Babymoov-052028-Red-Lovenest/dp/B000CEM6XS/ref=cm_cr_pr_product_top)

It's brand new as we never needed it, had it on classifieds recently for £5 posted - if you would like it PM me ;-)

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